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|Year : 2015 | Volume
| Issue : 2 | Page : 181-189
Indian Psychiatric Society multicentric study on assessment of health-care needs of patients with severe mental illnesses as perceived by their family caregivers and health-care providers
Sandeep Grover1, Ajit Avasthi1, Sandip Shah2, Bhavesh Lakdawala3, Kaustav Chakraborty4, Naresh Nebhinani5, Roy Abraham Kallivayalil6, Pranob K Dalal7, Vishal Sinha8, Praveen Khairkar9, Divya G Mukerjee10, R Thara11, Prakash Behere12, Nidhi Chauhan13, M Thirunavukarasu14, Sameer Malhotra15
1 Department of Psychiatry, Postgraduate Institute of Medical Education and Research, Chandigarh, India
2 Department of Psychiatry, SBKS MI and RC, Sumandeep Vidyapeeth, Pipaira, Vadodara, Gujarat, India
3 Department of Psychiatry, B. J. Medical College and Civil Hospital, Ahmedabad, Gujarat, India
4 Department of Psychiatry, College of Medicine and J.N.M. Hospital, Kalyani, India
5 Department of Psychiatry, PGIMS, Rohtak, Haryana, India
6 Department of Psychiatry, Pushpagiri Institute of Medical Sciences, Tiruvalla, Kerala, India
7 Department of Psychiatry, KGMU, Lucknow, Uttar Pradesh, India
8 Department of Psychiatry, S. N. Medical College, Agra, Uttar Pradesh, India
9 Department of Psychiatry, Mahatma Gandhi Institute of Medical Sciences, Sevagram, India
10 Department of Psychiatry, R. G. Kar Medical College, Kolkata, West Bengal, India
11 Schizophrenia Research Foundation (SCARF), Chennai, India
12 Department of Psychiatry, Datta Meghe Institute of Medical Sciences, Wardha, Maharashtra, India
13 Mental Hospital, Shimla, Himachal Pradesh, India
14 Department of Psychiatry, SRM Medical College Hospital and Research Centre, Chennai, Tamil Nadu, India
15 Department of Psychiatry, Fortis Hospital, New Delhi, India
Aim: To study the health-care needs of the patients with severe mental disorders as perceived by their family caregivers and the treating psychiatrists.
Materials and Methods: Caregivers of patients with severe mental disorders and their treating psychiatrists were assessed using Camberwell Assessment of Need-Research Version (CAN-R) scale and indigenously designed Supplementary Assessment of Needs Scale (SNAS).
Results: The study included 1494 patients recruited from 15 centers. The mean needs as per the CAN-R, perceived by the caregivers were 7.8 and treating psychiatrists were 8.1. About one-third of needs were unmet. On SNAS, both caregivers and treating psychiatrists reported a mean of 7.9 needs, of which more than half were unmet as per the caregivers. As per the treating psychiatrists, 45.5% of the needs as assessed on SNAS were unmet. There was a high level of correlation between needs perceived by the patients, caregivers and the treating psychiatrists. On CAN-R, main domains of needs as reported by the caregivers were those of money, relief of psychological distress, information about the illness and treatment, welfare benefits, transport, company and food. As per the treating psychiatrists, the most common total needs identified were those of relief of psychological distress, welfare benefits, information about the illness and treatment, money, transport, company self-care and physical health. The most common domains of needs as assessed on SNAS as per the caregivers were those of free treatment, medical reimbursement, psychoeducation, financial help, social support, insurance, more time from the clinicians and travel concession. The treating psychiatrists identified dealing with caregiver's stress as the most common need.
Conclusions: According to the family caregivers and treating psychiatrists, about one-third of the needs of the patients as assessed using CAN-R and about half of the needs as assessed using SNAS are unmet.
Dr. Sandeep Grover
Department of Psychiatry, Postgraduate Institute of Medical Education and Research, Chandigarh - 160 012
Source of Support: Indian Psychiatric Society (Funded amount-3.04 lakhs),, Conflict of Interest: None
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